Cyn Kohls
My feet are still freezing, I feel ok though.  I've been going to bed earlier, for lent, and it seems to help.  Although I still could nap at anytime.
So, my surgeon walks into the room and I think we are going to talk about and schedule the nerve surgery I need for my elbow.  Instead he says "didn't I ask you to have another nerve conduction study?"  NO - I am thinking.  I say, very nicely, no you did not.  I thought we were discussing and scheduling the surgery.  He said he wants another study before he opperates.  Remember, this is a very simple thing to do, just a simple slice in the sink and a cut of the tendon holding the nerve... He then says, what about your neck? "I want Dr.... to see you for the nerve conduction and look at your MRI to consult with me on you neck.  OK, does anyone else get the feeling he wants to opperate on my neck?  He is a neurosurgeon and that is what he does...

Good news, people with MS should have 4 cups of a caffenated drink a day.  I love ice tea!!
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Cyn Kohls
ok,  what is going on  with me - physically.  my feet are freezing, really freezing.  If they are down (when I am sitting or walking) they are purple and prickly.  If I put them up they feel like they are numb, sting and still freezing.  I am sleeping a lot also.  It is harder than normal to get around.  My muscles are weak, hard to lift my self up with my arms and my legs...
My husband thinks I might be anemic again... I have not lost any blood though.  I could have eaten something bad and I am just processing out the stuff...I think it might be an infection - my son has had strep throat...maybe that is it.  I do not have a sore throat, fever, or anything else... However, I could of caught a bug and that would explain everthing but the freezing feet... Ah, I'm going with that - just a bug and it will get better.  Better for me is just back to my normal...
Other than that things are good around here.  My daughter is back for a bit and I love being with her.  She smiles all the time (except when I ask too many questions-doesn't stop me)  There is a lot more laughing going on around here.  My two kids are having fun together and we all love to see and hear that!  We are enjoying a very mild winter around here.  Today is the first day that I remember it snowing - that snow that melts on contact because it is still warm, 38'.  So, I am trying to get someone to build a fire to no avail.  From what they are telling me it is not cold.

(i'm re-reading this today and it made me smile to read the word "walking"  I really do not walk...I use a walker around the house but I sit in it mostly...:(.  I really need to find a way back to walking.  I did call the Cleaveland Clinic about stem cell, I will keep you posted.  Today however, I am going to nuerosurgeon to finnalize the apointment for surgery on my elbow - decided against having my neck opperated on because I do not want to undergo anathesia for just the possiblity of getting some what better)




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Cyn Kohls
One month down and not too bad!  I think I've eaten only three things I should not have.  pretty darn good!  I have not been making my own "green" juice, I have been buying True Green.  I like it and I add kelp, spriallina, turmeric, chia seeds, and flax oil.  This way I do not have any of the clean-up from the juicer or the compost stuff, since I am not ready to compost anything.  So, there are a little improvements I can, and will, make in my diet.  I am also going to start adding back my vitamins. There are quite a few of them - but I think they help.
I have been going to physical therapy, now for my tendons in my wrist.  So, now that I am not having my neck worked on it is bad again and the headaches are back, daily.  Last week the PT guy worked on it and brought me to tears.

That was last week, this week I am not feeling up to blogging or much else.  I am going to post this and go about my day.
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Cyn Kohls
Happy 2015!  I have only one resolution - to get back on Dr Wahls program 100%. Today being January  4th h and all is well! I have been successful forthe first 3 days and today looks good also.  I am just starting to go through the cleanse phase, change diet will do that.  It isn't a pleasant feeling, like I am  sick, but it will have many more positive effects than negative.






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Cynthia

Oh my,  what a morning.   I am sitting in my car; in a parking lot, looking for something to pass two hours, waiting for my son. I want to be inside watching my son instead of being here.   However, the segway is acting weird!  I went too start it and the pads were sticking and the little feet were blinking. So, I reached down and lifted the pad off the sensor and the little feet stop blinking. Then, the problem started. .. the right side started going crazy - making all kinds of noise and only stopping if I held the pad off.  Since I have to have the pad on when I ride it I figured I better not chance it. Besides I can not take the pad off and I believe it is a sensor problem not a pad problem.  I am not getting on it, I am sitting here instead.   One hour goes by and I think time and sunshine have fixed the problem.   I go out to try it again.   This time I think I won't put the lift all the way down - save me the time in the cold.   Luckily I do stand behind the segway and not to the side - where I was.   Ok,  I start the segway and it turns on with the alarm and the little feet going crazy again. I lift the pad and it stops. Then everything seems normal, I think YA. Then NO. The right wheel is engaged and it starts to spin the segway.   Oh no - it is not on the ground!  I do not have good strength or balance and I can not get this thing stopped!  The segway is pushing me and it won't turn off - because it can't while engaged!    Ahhh, I panic a bit, my heart rate goes up and I wish that this is not my life. I can see this thing getting off the lift and going crazy, hitting cars, traveling around reeking havoc.  I see myself on the ground not being able to do anything to stop this.   So, I lean down - put my shoulder into the right wheel - use one hand to lift up the pad and the other hand to turn off the segway.  It won't turn off!  Now I have to use my body, my shoulder, my right hand just to keep this thing on the lift.   I use my left to lift the pad while pressing the off button. It works,  The segway is off!  It jumps back in place, taking me with it. However, I catch my balance and I am so thankful that it is over without any damage done!  Wow,  I am sitting in the car waiting - enjoying the radio,  Click and Clack brothers,  and enjoying the nothingness.

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Cyn Kohls
Copied from Dr Wahls facebook page

"Terry Wahls MD

For those who wonder why the MS doctors have not embraced diet as a treatment strategies - Read THE TIPPING POINT - How little things can make a big difference. New ideas spread gradually. You can be an early adopter or a later adopter. It took 200 years for the NAVIES of the world to give vitamin C rich foods to prevent Scurvy which decimated the sailors for centuries. It took 30 years for the idea of helicobacter pylori infections as the primary cause for stomach ulcers. Medicine usually takes 30 to 50 years for clinical ideas to spread. I am giving the public the chance to skip the 30 to 50 years while we do the science. You can be an early adopter and start making dietary changes now to improve your health and reverse chronic disease problems -- or you can wait the 30 to 50 years and be a late adopter. Both are valid choices. It will depend on which makes the most sense to you. Are you an innovator, early adopter, late adopter, or a resistor?"
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Cyn Kohls
As with most things in life there are conflicting ideas, research, papers, doctors opinions, personal opinions on diet and MS.  I just re-read the article in Momentum, the National MS society magazine, on page 50 Diet and MS,  I would like to say that I am pleasantly surprised by the writers at Momentum, but I can not!  They refer to the idea of diet effecting MS as "so called" MS diets and say that they do not "demonstrate any improvements in MS related relapses or disability over a one year period."  They site a study from Oregon Health and Science University and say that it was inconclusive.  They do say it helped with fatigue, a major part of MS.  However, I want to comment on this particular diet and fatigue.  This is a vegan diet low in fat.  This diet focus was on consuming starches, potatoes, corn, rice, beans, pasta, oats, fruits and vegetables.  Protein coming from beans, lentils, some nuts and soy.  Having no dairy and no meat.  I agree with the no dairy, our bodies were not made to consume and process dairy.  There are studies out now that show dairy actually takes calcium from our bones... contributes to many health problems.  One area it hurts is our guts.  I believe this diet studied hurts our "guts" quite a bit.  We need our microbiome to be healthy in order to keep the body functioning well.  The idea of vegan or vegetarian is half ok with me.  Starches, potatoes, and grains (all grains) sit in the gut and block nutrients.  Grain, Legumes, and Soy are so GM that they need to be sprayed heavily with chemicals just to get them to grow.  Theses GMOs and chemicals block nutrients from being absorbed also they do not have nutrients to begin with because they are so modified.As far as not eating meat - well, I believe we need amino acids and nutrients only found in meat for our health and well being.  I believe our bodies were designed by nature (God) with everything we need to be omnivores (check out Dale's you tube video at "Are Humans Designed To Eat Meat?") The article also states that there have not been rigorous controlled studies.  I've been apart of a study for the past two years.  It is run by doctors at the University of Iowa and it has been rigorous and controlled... The article has been published and Dr Wahls has written a book that is available for your reading.  This article and the diet they talk about say that there was an improvement with fatigue only.  They also say that the participants lost weight.  The man they interviewed lost 65lbs.  That is a lot of weight, no wonder his fatigue has gotten better.  I don't know about you but I see the connection there.  I do believe that diet plays a major role in MS and all autoimmune disease.   I myself can tell that Dr. Wahls' program has merit.  I am living proof.  My fatigue level has improved along with "brain fog", motor skills, reaction time, thought process, attitude, mental state, even my walking (not great now but I was doing better before my concussion from the doors at Office Max).  So, I do believe that everyone should eat the "Wahls" way.  basically, No grains, No dairy, No legumes, limited starchy vegetables, Yes fruits, Yes vegetables, and YES meat.  check her out on line and even buy her book.  Her lifestyle eating has changed my life and it will change yours.
I still want to trust the MS societies - but I really don't.  I think the drug companies are to influential there.

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