Cyn Kohls
Here are some suggestions I've seen on the internet for MS memory - brain fog.  I do some of these things, not because I have MS, because I am old :).


Make lists and take them with you – People used a variety of systems for list-making, from post-it notes, smartphone applications, and small notebooks that were carried at all times
“Post-its are my best friends!”
“I make notes about everything, even where my car is parked!”
“I have notes on my smart phone and a notebook that I take to the doctor with me”
Keep a calendar and update it regularly
Use alarms as reminders
Keep your brain active  – use online websites (such as luminosity.com) to play brain games, do crossword puzzles, practice meditation

I use my phone, love all the Google aps.  Really like that my husband knows how to set all of them up so my calendar is everywhere!!!
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Cyn Kohls
We've all heard this before, "your attitude makes the situation."  It is true, bad attitudes make for no fun, good attitudes makes fun.  Did you know attitudes can be contagious?  It is true, have you noticed that when you are with someone talking how easy it is to chime right in with "negative" or "positive" comments depending on the mood of the conversation. a lot of  "I knows, can you believes, did you see thats" going around.  It is also that easy to change the mood of the conversation by being aware of what you contribute.  "I know, how brave of that person to be...",  "can you believe how cool...",  "did you see that she must really like...."  We can all notice the negatives and are so used to making fun that the comments just flow right out.  I am making an effort to be more open, to put myself in others situations, to realize that I do not know what is going on in someone's  life and to appreciate that they are doing their best or at least what makes them happy.  Although, I must admit I do not mind having a short little  "can you believe it" conversation with my best friend knowing that it will not be taken any other way than blowing off steam.

Oh, last night during a game my attitude turned bad.  Unfortunately there were 14 young players counting on me to bring my A game, to see the positives and build on them.  There were few and far between impressive playing moments and by the last 2 minutes I was voicing my dismay.  It served no purpose and now I have to make it right with my team.  I will, they are a great group of young women who have many talents - even if basketball is not one of them :).  I am going to let them know that I think they have great potential and then have them run!

On a totally different subject - Miracles and Success. Being "sick" I have people telling me that they are praying for me, praying for a miracle.  I want to say "Thank You" and keep it up.  I also want to say that I could very well already be the "miracle" I am supposed to be.  Miracles are subjective, are they not?  As is success, right?  My idea of success is different than yours.  Some days success is getting showered and dressed.  Pretty lame for most people, however, there are some of us that find that successful.  As for miracles, I really do not know...maybe the miracle is living well with MS and not actually "getting rid" of it.

What do you think?
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Cyn Kohls
Awhile  back my husband came up with the idea of a Halloween hayride, since I could not keep up with them.  I was walking back then, just too slow.  Every year since more of our friends join us.  So this year we have 7 families going on the ride.  FUN!  Life with MS...
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Cyn Kohls
I had a great week in Canada with my family.  We traveled around 2,000 miles by plane and car.  We stayed in hotels along the way.  It was fun.  All the rooms were "handicapped accessible" so it was easy for me.  However, they were on high floors, i.e. 7,9 and 11, how would I get out if the elevators did not work?  We all know that elevators do not work in a fire, or at least that is what we read on the signs, but I think I would get in one anyways. :).  Seriously, what would you do if a 1st floor room was not available?  I want my husband to help my child get out, neither of them would let me get on the elevator or leave me... so I guess my husband better stay strong so he can carry me.  Or I could use something to slide down the stairs like we did as kids.  Yes, that is what I would do.  Ride the ride and cruise down the stairs.  Can't you see me whooping and hollering, just hope everyone gets out of my way.
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Cyn Kohls
Today I am having a hard time with my arms.  They are heavy and do not want to extend fully.  So putting away the groceries and the dishes from the dish washer was a challenge.  My husband and son stepped up, as usual, and finished the work for me.  I really appreciate them.

I have gone to my doctor to talk about my physical and mental situation as of late.  I have found out some interesting things, like; my thyroid nodules are getting bigger,  my MS is still "my MS", I'm getting older (50), my life after being knocked down at Office Max, and best of all Menopause!  My poor husband :).  It is all news that is "doable."  I am going to continue to improve my eating which will help all situations.  Dr Wahls has it right when it comes to fueling the body for health.  The two years I was "faithful" to her program served me well and have carried me through this "down" time while I did not eat well.  I believe that menopause will not be to horrible bad for me.  My doctor said I was "definitely" in it!  When I asked him if it would get worse he said more than likely not.  That is good for me - I only get warm once a day or less and it is usually at night.  I do not sweat enough to get anything "wet" just enough to get my feet warm!!  How nice is that, I love having my feet warm.  I am finding myself awake at night and I do notice a little difference in sex drive.  I am fine with those - I read at night and I am not the one who noticed the lack of interest in sex (once again my poor husband).  We all (my family) have to deal with the change in my physical abilities since January.  They have been harder to accept than any others.  I think it might be because they make the little I could do even less.  I now have trouble getting dressed, shaving (I hate that one), getting into and out of bed, getting into and out of the shower, standing to brush my teeth, and as I said earlier putting things away.  I still do all these things, which is a blessing, however they take me longer.
I think getting back on Dr Walhs program, fully, will help me get some of these things back.  However, the challenge with MS is that I do not know if it will work for me or not.  Has it work in the past? I do not really know I only think so.  I think that is what kept me from getting worse and even helped me get a little better. So, it is worth doing again however, it is a long term answer - a life long commitment.  A little daunting to think about, all that work for a possibility... 
So, along that thought process I think I will change neurologist to a younger, fresher, more open minded one and start looking into all the new medicines.  I do not think I will change my belief that my body can not handle "poisons" but I have come to the conclusion that I have to consider all the progress made in treating MS.  I will keep you posted as to what I find out...
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Cyn Kohls
Well, It is hard some days - funny the mental part of my life is just as hard as the physical these days. I never really understood how much of an impact mental health has on everything.  I react so quickly with my emotions and they are all over the place!!  I at least am aware of what is going on and I am starting to get control over my "over reactions."  The people in my life are very helpful in that area, they definatley let me know when I am acting like it is the end of the world.

I have a headache, pretty much every day since January.  I did get a optic nerve block and that was helpful for a couple of months.  I am not sure I will do it again.  I have to figure out a way to get rid of them myself.

ok, it is fall break here and we have headed up to the cottage in Quebec.  Funny story, the trunk of the rental car is very small, our large suitcase and walker just fit.  Figuring out how to make them fit my husband took the wheels off the walker.  Because of this (no wheels walker) he told me to give him "fair" warning on bathroom breaks.  I decide not to drink anything so that I would not have to "rush" anywhere.  When they stop to eat I ask for the walker to go to the bathroom, although I really do no have to go.  My husband, who is dressed for the sun we just left is in shorts and is freezing and I having said the word bathroom so now I really have to go, is hurrying up to get me inside and himself out of the wind.  In his haste he puts the walker together with the wheels on upside down.  It is dark and cold out.  He brings it over to me and it is a foot short, wobbling on two wheels looking like a person standing on the insides of their feet with their ankles turned out.  We start laughing and yelling at each other because now he is really cold and I really have to go!  I can not use the walker because I can not bend down that low and it is so unstable.  He will not leave me there so he tells me to sit down on the seat and he will push me in.  Of course the walker won't push - it is not on the upturned wheels.  So he grabs the walker and starts pulling me in.  The wheels are flaying all over and I am laughing and telling him to stop!  He just powers on - lifting the walker to the two wheels that will roll and uses his strength to get me in.  Meanwhile our son has gone in another door and is ignoring us completely, acting like this is a normal everyday occurrence. Well, we made it inside, where the walker was fixed and the bathroom was made. Oh my, this MS has changed our lives so completely but the laughter remains!  I wish I had a picture of that walker - I'll get one it was just so funny - or maybe it was the cold dark night and having to go so badly...
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Cyn Kohls
It is so easy to look at someone and make judgments.  I do it; I see someone that is "fat" riding in a motorized chair and think -"really, I wish I had their problems."  I am assuming that it is just a matter of over eating. Instead of giving them the benefit of the doubt.  For all I know they have some medical condition - could even have MS.  I don't know.  That is my point - do not assume the worst - lets start assuming the best in people.  I get the judgmental looks just about everyday and I don't even have to be in public.  I give the "look" myself everyday - if you ask my husband :).  I've been on my segway and have had little old women tell me to "get out of the store" or "I've got some nerve to be on that in here endangering people."  I've had young men tell me "that's taking the easy way out."  What they are doing is assuming that I am on my segway for fun instead of transportation.  They would feel differently if they knew I needed it to walk.  They might be thankful that they are still walking themselves.  At the very least they would not tell me to "get out."

With my MS some days are harder than others and I do not like to focus on that or announce it to my family and friends.  Instead I just "hang out".  It might take all my energy to get dressed in the morning so I'll sit for the next couple of hours reading, watching TV, facebook, or listening to music, I might fall asleep.  I know that there is laundry to be done, bathrooms to be cleaned, food to be made, dishes to be put up...the list goes on. I know the list. Sometimes I forget the list and I do not mind that!   Knowing the list does not make it easier for me to get it done.  I am not ignoring the list. I am not just "sitting there and doing nothing."  I know it looks like I am doing nothing.  Please do not assume the worst - assume the best - think "I know her, she would not just sit there unless she needs too."  I know this is hard, it is hard for me too.  The really hard part is knowing when to ask and say "how long do you need because we need you around here" or "I have not seen you lately, it is time to get out of the house."  It is o.k. to remind me to keep on pushing just remember that it is o.k. if I can not "keep on" right now.

ASSUME THE BEST - but do not be fooled :)

i should note that my neurologist has said that my MS has not changed in the past year - all my issues have come after being knocked down at office max.  dr wahls' program was working wonders for me and I have to get back to that!

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