Cyn Kohls
THIS IS FROM JUNE

I just got back from the specialist in Denver.  He told me that he believes I suffered from two concussions.  A cerebral concussion and a cervical contusion.  I have looked on line and can only find information on cervical spinal cord contusion.  So, I guess that explains why I am still having problems with numbness, pain, weakness, and fine motor skills in my arms and hands and my neck hurts.

I got the flu last month - influenza B.  I lost strength and could not get myself to the bathroom - this created problems, as I'm sure you can imagine.  So I made the brilliant decision to not drink so much water (sound thinking on my part).  So, of course I got weaker.  My husband took me to the hospital er, where we thought I would spend one night getting fluids. Turned out they thought better than I did and keep me over two weeks.  I must admit when I was feeling sick I did not mind being there - it was nice just sleeping 24hours a day and having fluids pumped in and drained out :).  Then I started feeling better and wanted out of there!  They thought it would be a great time to see what I can do for myself and how I get around.  The physical therapist came by three times a day.  I had to keep reminding myself what my mother taught me - "if you have nothing nice to say, say nothing at all."  I was very quite the first couple of days they came in.  Then I forgot what she told me and started telling them what I was going to do :).  No, I did what they asked-as long as they did what I asked.  Like allowing me to use a walker to go the 4 feet to the toilet by myself instead of two techs coming in and pulling me up and moving me around by a belt.  Overall, it was ok.  I needed the physical therapy.

Now on to the positives - it is beautiful outside and school is over in 1 week!  Yeh! I love summer. We are planning a trip in June to go to Iowa, Illinois, Michigan and Quebec.  I'm  looking forward to being with family and friends.  In Iowa I will have my last appointment with Dr Wahls.  I still see the benefits of eating right for MS.  I do think it is building on a "broken" foundation though and real results will come from rebuilding that foundation along with the diet.  Now I have to find a way to repair the "foundation".  Some people have had chemotherapy that has wiped out their immune system so they started over....  I do not have a way to get rid of the "foundation" but I will!

I have heard there is a doctor in NY that is studying how to turn stem cells into neuro cells instead of just younger stem cells.  This would be great because it is a targeted approach as opposed to a general "go anywhere in the body" cell.  I hope she is fast!
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Cyn Kohls
ok, my daughter has informed me that this has become a very negitive blog.  So I've been thinking of all the positive things I have in my life.  I am sure there are many, my daughter for one!  However, I am not in the right frame of mind, so I will be taking a break from blogging, for a little while anyway.
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Cyn Kohls
My feet are still freezing, I feel ok though.  I've been going to bed earlier, for lent, and it seems to help.  Although I still could nap at anytime.
So, my surgeon walks into the room and I think we are going to talk about and schedule the nerve surgery I need for my elbow.  Instead he says "didn't I ask you to have another nerve conduction study?"  NO - I am thinking.  I say, very nicely, no you did not.  I thought we were discussing and scheduling the surgery.  He said he wants another study before he opperates.  Remember, this is a very simple thing to do, just a simple slice in the sink and a cut of the tendon holding the nerve... He then says, what about your neck? "I want Dr.... to see you for the nerve conduction and look at your MRI to consult with me on you neck.  OK, does anyone else get the feeling he wants to opperate on my neck?  He is a neurosurgeon and that is what he does...

Good news, people with MS should have 4 cups of a caffenated drink a day.  I love ice tea!!
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Cyn Kohls
ok,  what is going on  with me - physically.  my feet are freezing, really freezing.  If they are down (when I am sitting or walking) they are purple and prickly.  If I put them up they feel like they are numb, sting and still freezing.  I am sleeping a lot also.  It is harder than normal to get around.  My muscles are weak, hard to lift my self up with my arms and my legs...
My husband thinks I might be anemic again... I have not lost any blood though.  I could have eaten something bad and I am just processing out the stuff...I think it might be an infection - my son has had strep throat...maybe that is it.  I do not have a sore throat, fever, or anything else... However, I could of caught a bug and that would explain everthing but the freezing feet... Ah, I'm going with that - just a bug and it will get better.  Better for me is just back to my normal...
Other than that things are good around here.  My daughter is back for a bit and I love being with her.  She smiles all the time (except when I ask too many questions-doesn't stop me)  There is a lot more laughing going on around here.  My two kids are having fun together and we all love to see and hear that!  We are enjoying a very mild winter around here.  Today is the first day that I remember it snowing - that snow that melts on contact because it is still warm, 38'.  So, I am trying to get someone to build a fire to no avail.  From what they are telling me it is not cold.

(i'm re-reading this today and it made me smile to read the word "walking"  I really do not walk...I use a walker around the house but I sit in it mostly...:(.  I really need to find a way back to walking.  I did call the Cleaveland Clinic about stem cell, I will keep you posted.  Today however, I am going to nuerosurgeon to finnalize the apointment for surgery on my elbow - decided against having my neck opperated on because I do not want to undergo anathesia for just the possiblity of getting some what better)




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Cyn Kohls
One month down and not too bad!  I think I've eaten only three things I should not have.  pretty darn good!  I have not been making my own "green" juice, I have been buying True Green.  I like it and I add kelp, spriallina, turmeric, chia seeds, and flax oil.  This way I do not have any of the clean-up from the juicer or the compost stuff, since I am not ready to compost anything.  So, there are a little improvements I can, and will, make in my diet.  I am also going to start adding back my vitamins. There are quite a few of them - but I think they help.
I have been going to physical therapy, now for my tendons in my wrist.  So, now that I am not having my neck worked on it is bad again and the headaches are back, daily.  Last week the PT guy worked on it and brought me to tears.

That was last week, this week I am not feeling up to blogging or much else.  I am going to post this and go about my day.
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Cyn Kohls
Happy 2015!  I have only one resolution - to get back on Dr Wahls program 100%. Today being January  4th h and all is well! I have been successful forthe first 3 days and today looks good also.  I am just starting to go through the cleanse phase, change diet will do that.  It isn't a pleasant feeling, like I am  sick, but it will have many more positive effects than negative.






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Cynthia

Oh my,  what a morning.   I am sitting in my car; in a parking lot, looking for something to pass two hours, waiting for my son. I want to be inside watching my son instead of being here.   However, the segway is acting weird!  I went too start it and the pads were sticking and the little feet were blinking. So, I reached down and lifted the pad off the sensor and the little feet stop blinking. Then, the problem started. .. the right side started going crazy - making all kinds of noise and only stopping if I held the pad off.  Since I have to have the pad on when I ride it I figured I better not chance it. Besides I can not take the pad off and I believe it is a sensor problem not a pad problem.  I am not getting on it, I am sitting here instead.   One hour goes by and I think time and sunshine have fixed the problem.   I go out to try it again.   This time I think I won't put the lift all the way down - save me the time in the cold.   Luckily I do stand behind the segway and not to the side - where I was.   Ok,  I start the segway and it turns on with the alarm and the little feet going crazy again. I lift the pad and it stops. Then everything seems normal, I think YA. Then NO. The right wheel is engaged and it starts to spin the segway.   Oh no - it is not on the ground!  I do not have good strength or balance and I can not get this thing stopped!  The segway is pushing me and it won't turn off - because it can't while engaged!    Ahhh, I panic a bit, my heart rate goes up and I wish that this is not my life. I can see this thing getting off the lift and going crazy, hitting cars, traveling around reeking havoc.  I see myself on the ground not being able to do anything to stop this.   So, I lean down - put my shoulder into the right wheel - use one hand to lift up the pad and the other hand to turn off the segway.  It won't turn off!  Now I have to use my body, my shoulder, my right hand just to keep this thing on the lift.   I use my left to lift the pad while pressing the off button. It works,  The segway is off!  It jumps back in place, taking me with it. However, I catch my balance and I am so thankful that it is over without any damage done!  Wow,  I am sitting in the car waiting - enjoying the radio,  Click and Clack brothers,  and enjoying the nothingness.

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